Multimodal Evaluation of Differentiated Thyroid Cancer Patient Information Booklets: Strengths and Limitations in Content Quality, Readability, and Patient-Centered Communication
Authors' conclusion
Assessed DTC PIBs show a persistent mismatch with patient-identified needs, particularly in psychosocial, care-coordination, and complementary-medicine domains, alongside variable quality of treatment information, understandability, and actionability. Readability remains uniformly more complex than recommended. These findings are useful for the development and clinical use of patient information materials.
Study context
- Population
- Differentiated thyroid cancer (DTC) patient information booklets (PIBs): 5 in English, 5 in French, assessed by 6 healthcare professionals
- Participants
- 10 PIBs
- Outcome
- Multimodal evaluation of DTC PIBs
Methodological detailsexploratory, multimodal evaluation, Assessed for content across 7 themes from a systematic review of unmet patient needs, DISCERN, PEMAT-P and 4 readability indices
- Exploratory
- Multimodal evaluation
- Assessed for content across 7 themes from a systematic review of unmet patient needs, DISCERN, PEMAT-P and 4 readability indices
Main finding
As reported in the abstract
Global content scores ranged
25% to 70%
DISCERN excellent / good / fair (PIBs)
3 / 4 / 3
Sufficiently understandable on PEMAT-P (PIBs)
8
Sufficiently actionable on PEMAT-P (PIBs)
5
Observational data: associations, not effects.
Original publication
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