Cross-Cultural Disparities in Psychosocial Research with Individuals with Classical Congenital Adrenal Hyperplasia: A Scoping Review
Authors' conclusion
A discrepancy exists between those countries with the highest CAH rates and those publishing psychosocial research. Specifically, increased rates of CAH are seen in non-Western countries/regions, whereas most psychosocial research arises out of Western Europe and the USA. Due to cultural differences between these regions, increased global collaboration is needed to both inform psychosocial research and translate findings in ways that are representative worldwide.
Study context
- Population
- Individuals with classical congenital adrenal hyperplasia (CAH) and their families68 and 93 full-text articles
- Comparison
- CAH diagnosis rates vs CAH psychosocial research rates across countries
- Outcome
- CAH rates and psychosocial publications by country
Methodological detailsdual approach, Six electronic database searches; two authors reviewed each abstract
- Dual approach
- Six electronic database searches; two authors reviewed each abstract
Main finding
As reported in the abstract
Full-text articles evaluated for incidence and for country, respectively
68 and 93
Original publication
Cross-Cultural Disparities in Psychosocial Research with Individuals with Classical Congenital Adrenal Hyperplasia: A Scoping Review. Horm Res Paediatr. Published 8 August 2023. doi:10.
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