Type 2 & other diabetes

Is the burden of diabetes in Australia underestimated? Comparison of diabetes ascertainment using linked administrative health data and an Australian diabetes registry

Diabetes Res Clin PractPublished Diagnostic accuracy study

Authors' conclusion

This study demonstrates the value in using linked administrative data for diabetes monitoring and surveillance. National estimates using the NDSS alone may underestimate the diabetes burden by up to 35%.

Study context

Population
Individuals aged ≥45 years from the 45 and Up Study, Australia
Participants
266,414 individuals
Comparison
Administrative-data diabetes algorithm vs NDSS registrations
  • NDSSn = 35,900reference
Outcome
Diabetes ascertainment by algorithm vs NDSS
Methodological detailsprospective cohort, linked administrative health data
  • Prospective cohort
  • Linked administrative health data

Performance

As reported in the abstract

Test or modelSensitivitySpecificityPPV
Algorithm96.9% (95%CI 96.7-97.1)91.8% (95%CI 91.7-91.9)64.9%, 95%CI: 64.6-65.2

Algorithm

Sensitivity96.9% (95%CI 96.7-97.1)
Specificity91.8% (95%CI 91.7-91.9)
PPV64.9%, 95%CI: 64.6-65.2
Certain diabetes identified by the algorithm
53,669
Of 53,699 identified by the algorithm, registered to the NDSS
34,864

Original publication

Is the burden of diabetes in Australia underestimated? Comparison of diabetes ascertainment using linked administrative health data and an Australian diabetes registry. Diabetes Res Clin Pract. Published 18 March 2025. doi:10.1016/j.diabres.2025.112113

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