Do adolescents and emerging adults receive the diabetes care they truly need? A nationwide study of the quality of diabetes health care during the transition from paediatric to adult care
Authors' conclusion
This study highlights several areas to be addressed for improving health care and the transition to adult diabetes care in adolescents and young adults with type 1 diabetes, including provider continuity, individualised care and involvement of multidisciplinary teams.
Study context
- Population
- Adolescents and young adults with childhood-onset T1D last registered in the Norwegian Childhood Diabetes Registry 2009–2012, ≥2 years in adult care; mean age at transfer 18.0 years321 answered questionnaire
- Participants
- 776 adolescents
- Exposure
- Paediatric vs adult diabetes care
- Outcome
- Patient experiences of care
Methodological detailsnationwide, questionnaire coupled with registry and medical records data, growth mixture model
- Nationwide
- Questionnaire coupled with registry and medical records data
- Growth mixture model
Main finding
As reported in the abstract
- Registry and medical records data confirmed the patient-reported experiences
- Between Paediatric care and Adult care: P < 0.001
Observational data: associations, not effects.
Further findings
Longitudinal glycaemic control
- Two groups with distinctly different glycaemic trajectories identified
- Patient-provider continuity and perceived preparedness for transfer were the most influential predictors
Original publication
Do adolescents and emerging adults receive the diabetes care they truly need? A nationwide study of the quality of diabetes health care during the transition from paediatric to adult care. Diabet Med. Published 3 April 2023. doi:10. 1111/ dme. 15091
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