Type 1 diabetes

Do adolescents and emerging adults receive the diabetes care they truly need? A nationwide study of the quality of diabetes health care during the transition from paediatric to adult care

Diabet MedPublished Population-based cohort study

Authors' conclusion

This study highlights several areas to be addressed for improving health care and the transition to adult diabetes care in adolescents and young adults with type 1 diabetes, including provider continuity, individualised care and involvement of multidisciplinary teams.

Study context

Population
Adolescents and young adults with childhood-onset T1D last registered in the Norwegian Childhood Diabetes Registry 2009–2012, ≥2 years in adult care; mean age at transfer 18.0 years321 answered questionnaire
Participants
776 adolescents
Exposure
Paediatric vs adult diabetes care
Outcome
Patient experiences of care
Methodological detailsnationwide, questionnaire coupled with registry and medical records data, growth mixture model
  • Nationwide
  • Questionnaire coupled with registry and medical records data
  • Growth mixture model

Main finding

As reported in the abstract

  • Registry and medical records data confirmed the patient-reported experiences
  • Between Paediatric care and Adult care: P < 0.001

Observational data: associations, not effects.

Further findings

Longitudinal glycaemic control

Two groups with distinctly different glycaemic trajectories identified
Patient-provider continuity and perceived preparedness for transfer were the most influential predictors

Original publication

Do adolescents and emerging adults receive the diabetes care they truly need? A nationwide study of the quality of diabetes health care during the transition from paediatric to adult care. Diabet Med. Published 3 April 2023. doi:10.1111/dme.15091

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