Advancing Monogenic Diabetes Research and Clinical Care by Creating a Data Commons: The Precision Diabetes Consortium (PREDICT)
Authors' conclusion
This approach may be useful for other rare conditions that would benefit from access to harmonized pooled data.
Study context
- Population
- Monogenic diabetes mellitus research institutions (PREDICT consortium)
Methodological detailsmulticenter, national consortium, Created by the UChicago Monogenic Diabetes Registry (UCMDMR) and UChicago Data for the Common Good (D4CG), following the D4CG model
- Multicenter
- National consortium
- Created by the UChicago Monogenic Diabetes Registry (UCMDMR) and UChicago Data for the Common Good (D4CG), following the D4CG model
Main finding
As reported in the abstract
- PREDICT established a multicenter monogenic diabetes mellitus (MDM) data commons
- PREDICT created a consensus data dictionary
Original publication
Advancing Monogenic Diabetes Research and Clinical Care by Creating a Data Commons: The Precision Diabetes Consortium (PREDICT). J Diabetes Sci Technol. Published 9 January 2025. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →