A Long-Term Evaluation of Facebook for Recruitment and Retention in the Environmental Determinants of Islet Autoimmunity (ENDIA) Type 1 Diabetes Pregnancy-Birth Cohort Study
Authors' conclusion
Facebook was a valuable recruitment tool for ENDIA. Compared with conventional recruits, Facebook recruits were three times less likely to withdraw during long-term follow-up and had different sociodemographic characteristics. Facebook content featuring participants was the most engaging. These findings inform social media strategies for future cohort and type 1 diabetes studies.
Study context
- Population
- Pregnancy-birth cohort following children with a first-degree relative with T1D (ENDIA study), Australia794 Facebook posts
- Participants
- 1,511 participants
- Exposure
- Facebook vs conventional recruits
- Facebookn = 300
- Outcome
- Study withdrawal
- Follow-up
- Median 3.3 years
Methodological detailsAustralia-wide, long-term evaluation
- Australia-wide
- Long-term evaluation
Main finding
As reported in the abstract
P < 0.001
Observational data: associations, not effects.
Further findings
- Source of referral — Facebook
- 19.9%
- Source of referral — Facebook was the third largest source of referral
- 300/1511; 19.9%
- Recruit characteristics
- P < 0.001
- Recruit characteristics
- P = 0.01
Engagement with Facebook content
- Facebook followers enrolled in the study (of 2337 followers)
- <20%
- Content featuring stories and images of participants received the highest engagement
Original publication
A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study. J Diabetes Sci Technol. Published 22 February 2022. doi:10.
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