Transition between pediatric and adult diabetes healthcare services: an online global survey of experiences and perceptions of young people with diabetes and their carers
Authors' conclusion
Findings highlight the urgent need to improve the transition process. A joint ISPAD, EASD, and ADA consensus report is in preparation.
Study context
- Population
- PwD (aged 14–25 years) and their carers, around transition from pediatric to adult diabetes healthcare services; 29 countries
- Participants
- 146 participants29 countries
- Exposure
- PwD vs Carers
- PwDn = 90
- Carersn = 56
- Outcome
- Experiences and perceptions around transition planning and transfer from pediatric to adult diabetes healthcare services
Methodological detailsonline global survey, seven language options, Survey advertised by ISPAD, EASD, patient advocates, team members and partners via newsletters, websites, e-mails and social media
- Online global survey
- Seven language options
- Survey advertised by ISPAD, EASD, patient advocates, team members and partners via newsletters, websites, e-mails and social media
Main finding
As reported in the abstract
Transition experiences and perceptions
- Reported a fixed transfer age (≥18 years)
- 65.1%
- Detailed transfer-related concerns
- 45.2%
- Felt psychosocial needs adequately addressed
- 44.3%
- Felt unprepared for areas of self-management
- 24.7%
- Most desired: combined pediatric and adult diabetes clinics
- 56.2%
- Most desired: psychologist support
- 50.7%
- Respondents receiving care in pediatric units (vs adult)
- 58.2%
- Pediatric (vs adult) care: higher care satisfaction and more frequent appointments
- p < 0.05
Observational data: associations, not effects.
Original publication
Transition between pediatric and adult diabetes healthcare services: an online global survey of experiences and perceptions of young people with diabetes and their carers. Horm Res Paediatr. Published 26 March 2025. doi:10.
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