Transition and transfer experiences and their correlates in emerging adults with type 1 diabetes
Authors' conclusion
In this study we used a novel measure, TEXP-Q, to explore experiences of transitional care preparation among emerging adults with T1D. While most participants reported high satisfaction with the healthcare-provider communication, fewer reported feeling sufficiently prepared for the transition and transfer processes. The potential correlates investigated could not with conviction be regarded as important for the transition and transfer experiences. Using TEXP-Q in clinical practice may provide vital information when evaluating existing healthcare practices for emerging adults with T1D, and when planning for improvement of care offered to emerging adults in preparation for transition and transfer.
Study context
- Population
- Emerging adults with T1D at eight Swedish adult diabetes clinics
- Participants
- 162 adults
- Outcome
- Transition and transfer experiences measured by TEXP-Q (Transitional care EXPeriences Questionnaire), a novel patient-reported experience measure
Methodological detailsmulticentre
- Multicentre
Main finding
As reported in the abstract
TEXP-Q total scale, mean average score ± SD
3.6±0.7
Subscale healthcare-provider communication
4.5±0.7
Subscale autonomy and participation
3.5±0.9
Subscale transition and transfer preparation
3.0±1.1
Observational data: associations, not effects.
Further findings
Sex and TEXP-Q
- Sex significant only for transition and transfer preparation, better perceived preparation among men vs women
- P = 0.004
Correlates of positive transition and transfer experiences
- Higher level of empowerment
- rho 0.34, p<0.001
- Diabetes self-efficacy
- rho 0.32, p<0.001
- Satisfaction with healthcare climate in adult care
- rho 0.36, p<0.001
Original publication
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