Improving equity in diabetes technology use: Voices of youth and their parents
Authors' conclusion
The voices of historically minoritised youth with suboptimal T1D control and their parents provide important, previously unreported experiences and perspectives on barriers and facilitators to using HCL that will shape interventions to improve equity in access to diabetes technology.
Study context
- Population
- Publicly insured, insulin pump-naïve non-Hispanic Black youth aged 6–21 years with T1D and baseline haemoglobin A1c (HbA1c) ≥86 mmol/mol (10%), and their parents, after 6 months of HCL useyouth, plus parents
- Participants
- 15 participants
- Exposure
- Youth vs Parents
- Outcome
- Experiences, barriers and facilitators of HCL access
- Follow-up
- After 6 months of HCL use
Methodological detailssemi-structured interviews within a mixed methods cohort study, semantic content analysis, consensus coding, thematic saturation achieved
- Semi-structured interviews within a mixed methods cohort study
- Semantic content analysis
- Consensus coding
- Thematic saturation achieved
Main finding
As reported in the abstract
- Access to HCL provides a new outlook on living with T1D, although managing T1D is still hard
- Diabetes technology felt most helpful for those struggling with management
- Barriers: misconceptions of HCL systems, clinician bias and systemic racism
- Suggested facilitators: diabetes technology education for all with T1D, community awareness of HCL, resources for social determinants of health
- Youth median age 14.9 years, 67% female; parents 92% female
Observational data: associations, not effects.
Original publication
Improving equity in diabetes technology use: Voices of youth and their parents. Diabet Med. Published 17 June 2024. doi:10. 1111/ dme. 15382
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