“I Think I Could Have Used It Better”: Experiences of Youth with High HbA1c Commencing Advanced Hybrid Closed‐Loop Therapy in a Clinical Trial Setting—A Qualitative Research
Authors' conclusion
All participants reported overall satisfaction with improved glucose levels, however, the persistent diabetes burden impacted their ability to use AHCL optimally. The need for ongoing monitoring with support and interventions to enhance psychological care remains vital for youth with suboptimal diabetes management.
Study context
- Population
- Youth aged 12–25 years with T1D on insulin pump therapy with HbA1c > 8.5% (> 69 mmol/mol) commencing advanced hybrid closed-loop (AHCL); mean (SD) age 17.4 (2.9) years, diabetes duration 10.7 (4.8) years, HbA1c 10.2 (0.8)% at enrollment
- Participants
- 10 participants
- Primary endpoint
- Experiences of youth with suboptimal glycemic control commencing AHCL therapy
- Follow-up
- After 6 months of AHCL
Methodological detailssingle-centre substudy of a multicentre 6-month randomised clinical trial, semistructured interviews, thematic analysis
- Single-centre substudy of a multicentre 6-month randomised clinical trial
- Semistructured interviews
- Thematic analysis
Primary result
As reported in the abstract
Main themes
- Improved glycemia despite not using closed loop to its full potential
- Persistent diabetes burden
- Need for increased psychosocial and clinical support
- Ongoing motivation issues and suboptimal system use reported
- Continued distress with overall diabetes management; need for ongoing support from family and health professionals
Original publication
“I Think I Could Have Used It Better”: Experiences of Youth with High HbA1c Commencing Advanced Hybrid Closed‐Loop Therapy in a Clinical Trial Setting—A Qualitative Research. Pediatr Diabetes. Published 3 September 2024. doi:10.
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