Healthcare and research priorities for women with polycystic ovary syndrome in the UK National Health Service: A modified Delphi method
Authors' conclusion
We identified 13 healthcare and 14 research priorities that reflect the current health needs of women with PCOS in the United Kingdom. Adopting these priorities in future healthcare and research planning will help to optimise the health of women with PCOS and increase patient satisfaction.
Study context
- Population
- Lay patient representatives of women with polycystic ovary syndrome (PCOS), UK
- Participants
- 624 lay participants
- Outcome
- Healthcare and research priorities of women with PCOS, ranked for importance
Methodological detailsthree-staged, two questionnaires and a consensus meeting
- Three-staged
- Two questionnaires and a consensus meeting
Recommendations
As reported in the abstract
Healthcare priority: better education for health professionals on PCOS diagnosis and management
238/273, 87.1%
Healthcare priority: set up specialist PCOS services
234/273, 85.7%
Research priority: better treatments for irregular periods
233/273, 85.3%
Research priority: better tests for early PCOS diagnosis
230/273, 84.2%
Further findings
Participant characteristics and experiences
- Diagnosed with PCOS
- 614/624, 98.4%
- Difficulties to receive a PCOS diagnosis
- 375/624, 60%
- Difficult to access specialised PCOS services in the NHS
- 594/624, 95%
Original publication
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