Different patient versus provider perspectives on living with Cushing’s disease
Authors' conclusion
CD patients experience long term symptoms and impaired QoL which may in part be due to a perception of lack of effective treatment options and little hope for improvement. Communicating experiences and care goals may improve long term outcomes for CD patients.
Study context
- Population
- Patients with Cushing's disease (CD) and healthcare providers (HCPs) attending the annual Memorial Sloan Kettering Pituitary Center pituitary symposium; median age 51 years in both groups; 78.3% of patients vs 53.0% of HCPs femalefrom 655 participants
- Participants
- 46 vs 116
- Exposure
- Patients with CD vs HCPs
- Patientsn = 46
- HCPsn = 116reference
- Outcome
- Reported having no choices in treatment
Methodological detailsanonymous pre-program surveys, 2020 and 2022 symposia
- Anonymous pre-program surveys
- 2020 and 2022 symposia
Main finding
As reported in the abstract
P < 0.001
Observational data: associations, not effects.
Further findings
Feeling alone living with CD (HCPs: perception of patients)
P = 0.08
Most common personal care goal concern
- Patients: 'quality of life (QoL)/mental health'; HCPs: 'medical therapies/tumor control'
Most common CD unmet need
- Patients: 'education/awareness'; HCPs: 'medical therapies/tumor control'
Original publication
Different patient versus provider perspectives on living with Cushing’s disease. Pituitary. Published 5 February 2024. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →