Defining Success in the Delivery of Fertility-Related Care for Patients with Differences of Sex Development
Authors' conclusion
A wide range of DSD stakeholders highlighted the importance of addressing fertility concerns in achieving favorable outcomes for individuals with DSD. These stakeholder perspectives should inform fertility-related education, shared decision-making processes, and clinical care.
Study context
- Population
- Differences of sex development (DSD) stakeholders: individuals with DSD, parents or caregivers, healthcare providers and other stakeholders
- Participants
- 110 participants
- Comparison
- Individuals with DSD vs Parents or caregivers vs Healthcare providers vs Other stakeholders
- Individuals with DSDn = 24
- Parents or caregiversn = 19
- Healthcare providersn = 37
- Other stakeholdersn = 30
- Outcome
- Conceptualization and attainment of "success" in fertility-related care (themes related to fertility)
Methodological detailssemi-structured interviews, phenomological approach
- Semi-structured interviews
- Phenomological approach
Main finding
As reported in the abstract
Fertility discussed in interviews
Individuals with DSD
19 of 24
19 of 24
Parents or caregivers
12 of 19
12 of 19
Healthcare providers
35 of 37
35 of 37
Other stakeholders
19 of 30
19 of 30
Original publication
Defining Success in the Delivery of Fertility-Related Care for Patients with Differences of Sex Development. Horm Res Paediatr. Published 26 August 2024. doi:10.
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