Burden of Treatment in Children and Adolescents With Type 1 Diabetes Evaluated by Focus Groups
Authors' conclusion
The identification of common concerns expressed through focus groups provides a new tool for estimation of BOT in childhood T1D.
Study context
- Population
- Children and adolescents with T1D aged 12.6 ± 3.7 years, 10 pediatric diabetes centers (Ariane study)
- Participants
- 84 children
- Outcome
- Burden of treatment (BOT) components; BOT score summing the number of concerns of each patient
Methodological detailsmulticentre, 10 pediatric diabetes centers, Verbatim analysed by five working groups: pediatric diabetologists, specialized nurses, adults with childhood-onset T1D, and two groups from civil society
- Multicentre
- 10 pediatric diabetes centers
- Verbatim analysed by five working groups: pediatric diabetologists, specialized nurses, adults with childhood-onset T1D, and two groups from civil society
Main finding
As reported in the abstract
BOT score
- Verbatim voicing children's concerns recorded
- 3640
- Main concerns summarizing burden of treatment (BOT)
- 24
- Concerns about physical, material and care organization
- 15
- Psychological concerns
- 9
- Mean BOT score (± SD; range 1-18)
- 7.4 ± 3.3
- Gender had a prominent influence on concerns
- p=0.002
Original publication
Burden of Treatment in Children and Adolescents With Type 1 Diabetes Evaluated by Focus Groups. Pediatr Diabetes. Published 12 June 2025. doi:10.
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