Awareness drives willingness: Results of the ISPAD JENIOUS — PREME T1D project on parents' perspectives on disease‐modifying therapy in T1D
Authors' conclusion
Informational and socioeconomic barriers to caregivers' awareness and acceptance of disease-modifying therapies may hinder the equitable implementation of preventive immunotherapy
Study context
- Population
- Parents and caregivers of youth living with T1D, worldwide, June 2024 to February 2025
- Participants
- 1,281 parents50 countries
- Outcome
- Knowledge, perceptions and willingness to consider disease-modifying therapies for prevention of clinical onset of T1D
Methodological detailsonline survey, 13 languages, worldwide
- Online survey
- 13 languages
- Worldwide
Main finding
As reported in the abstract
Unconditional willingness to accept disease-modifying treatments
31%
Observational data: associations, not effects.
Original publication
Awareness drives willingness: Results of the ISPAD JENIOUS — PREME T1D project on parents' perspectives on disease‐modifying therapy in T1D. Diabet Med. Published 29 September 2026. doi:10. 1111/ dme. 70478
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