Anxiety and Risk Perception in Parents of Children Identified by Population Screening as High Risk for Type 1 Diabetes
Authors' conclusion
Most parents of autoantibody-positive children have high anxiety about their child developing T1D. Information about the risk of developing T1D is difficult to convey, as evidenced by the wide range of risk perception reported in this sample.
Study context
- Population
- Parents of children aged 1 to 17 years with confirmed islet autoantibodies (elevated risk for T1D) identified by the Autoimmunity Screening for Kids (ASK) screening studychildren and caregivers enrolled
- Participants
- 280 parents
- Outcome
- Parental anxiety about child developing T1D (6-item SAI) and risk perception (single question)
- Follow-up
- Each monitoring visit
Methodological detailspopulation screening, follow-up education and monitoring program
- Population screening
- Follow-up education and monitoring program
Main finding
As reported in the abstract
Parental anxiety (SAI) · first follow-up monitoring visit
Mean parental anxiety (State Anxiety Inventory (SAI)), elevated above clinical cutoff of 40
46.1 ± 11.2
Parents reporting child at increased risk for T1D (visit 1)
48.9%
Observational data: associations, not effects.
Further findings
Parental anxiety at visit 2 · second follow-up monitoring visit
- Mean anxiety remained elevated but started to trend down
Perceived increased risk by child characteristics
- Parents of children with >1 islet autoantibody and a first-degree relative with T1D more likely to report increased risk
Original publication
Anxiety and Risk Perception in Parents of Children Identified by Population Screening as High Risk for Type 1 Diabetes. Diabetes Care. Published 6 September 2023. doi:10.
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