When the system fails: Barriers to type 1 diabetes medication access and the emergent role of social media support
Authors' conclusion
This study underscores the substantial barriers individuals with T1D encounter when accessing essential medications and supplies within the healthcare system. The findings highlight the pivotal role of social media in facilitating rapid support from the T1D community during times of urgent need. Addressing these systemic challenges is essential for enhancing healthcare access and improving health outcomes for individuals with T1D.
Study context
- Population
- Adults with T1D or caregivers of youth with T1D who had sought support through social media for diabetes medications and supplies25 adults · 5 caregivers
- Participants
- 30 participants
- Outcome
- Themes on barriers to insulin and diabetes device access, responses and health consequences
Methodological detailssemi-structured telephone interviews, qualitative thematic analysis
- Semi-structured telephone interviews
- Qualitative thematic analysis
Main finding
As reported in the abstract
- Multilevel barriers: system-wide failures in access, coordination and delivery; difficulties affording insulin and diabetes devices
- Challenges with coverage, benefits and approvals from insurers, pharmacies and durable medical equipment companies, overlapping with affordability problems
- Personal sacrifices and rationing behaviours in response to access challenges
- Serious health consequences from delayed or disrupted care; some experienced life-threatening situations such as DKA when unable to get needed medicines or supplies
- T1D community via social media seen as a valuable resource during emergencies when no other options were available
Original publication
When the system fails: Barriers to type 1 diabetes medication access and the emergent role of social media support. Diabet Med. Published 17 April 2026. doi:10.
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