Patient-reported outcomes in a Pituitary Tumor Center of Excellence (Pituitary Tumor Centers of Excellence (PTCOE))–aligned pituitary clinic compared with general endocrinology care
Authors' conclusion
PTCOE-aligned specialized care was associated with more favorable illness representations and higher patient satisfaction, even among cases with greater disease burden. This underscores the need for integrating patient-reported outcomes into the evaluation and refinement of pituitary care models.
Study context
- Population
- Adults with prolactinoma, non-functioning pituitary adenoma, acromegaly and Cushing's diseaseAdults with prolactinoma 70 · non-functioning pituitary adenoma 54 · acromegaly 35 · Cushing's disease 16
- Participants
- 175 adults
- Exposure
- PTCOE-aligned specialized pituitary clinic vs general endocrinology clinics
- Outcome
- Health-related quality of life (SF-36), illness perception (Illness Perception Scale) and outpatient satisfaction (Outpatient Satisfaction Scale)
Methodological detailstwo tertiary endocrinology centers
- Two tertiary endocrinology centers
Main finding
As reported in the abstract
Patient-reported outcomes
- Higher Timeline, Consequences and Treatment Control illness-perception scores in the specialized clinic
- Specialized clinic vs General endocrinology: all p ≤ 0.03
- Specialized clinic vs General endocrinology: all p ≤ 0.006
Observational data: associations, not effects.
Further findings
Baseline pituitary surgery
P = 0.001
Baseline hypopituitarism
P = 0.02
Multivariable analyses
- Clinic type, sex, hypopituitarism, surgical history and follow-up duration independently contributed to variation in multiple patient-reported outcome domains
Original publication
Patient-reported outcomes in a Pituitary Tumor Center of Excellence (PTCOE)–aligned pituitary clinic compared with general endocrinology care. Pituitary. Published 23 May 2026. doi:10.
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