Objective Burden and Emotional Distress of Parents of Children with Type 1 Diabetes
Authors' conclusion
Parents of children with type 1 diabetes must carry out multiple daily care tasks, at all times of day and night. Their emotional state can be impacted with, in particular, a risk of exhaustion. Screening for these difficulties should be a part of the overall management of a child with type 1 diabetes and his family to limit various complications.
Study context
- Population
- Parents of children with T1D; 86% mothers
- Participants
- 88 parents
- Outcome
- Objective burden (time spent on diabetes care), emotional distress (exhaustion, need for respite, quality of life), and symptoms of depression and anxiety
Methodological detailsanonymous questionnaire
- Anonymous questionnaire
Main finding
As reported in the abstract
Parental burden and emotional distress
- Diabetes care ≥2 times/day, parents of children ≤6 years
- 10/10
- Diabetes care ≥2 times/day, parents of children 7-13 years
- 37/39 (94.9%)
- Diabetes care ≥2 times/day, parents of children ≥14 years
- 16/36 (44.4%)
- Getting up every night because of child's diabetes
- 33/86 (38.4%)
- Median daily time on diabetes management
- 40 min
- Moderate-strong exhaustion
- 54 (62.8%)
- Moderate-strong need for respite
- 27 (30.7%)
- Symptoms of anxiety and/or depression (HADS)
- 46 (55.4%)
Observational data: associations, not effects.
Original publication
Objective Burden and Emotional Distress of Parents of Children with Type 1 Diabetes. Horm Res Paediatr. Published 13 July 2023. doi:10.
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