Type 1 diabetes

Feasibility of caregiver diabetes distress screening in routine clinical care of youth with type 1 diabetes

Diabet MedPublished Quality improvement feasibility study

Authors' conclusion

Clinic caregiver DD screening was implemented with higher response rates in person; however, expanding in-person screening to all eligible caregivers is necessary. Furthermore, since the PAID-PR was in English, some caregivers with DD were likely missed. Future directions include screening in additional languages.

Study context

Population
Caregivers of youth with T1D at routine follow-up visits, diverse academic US paediatric diabetes centercaregivers completed PAID-PR
Participants
391 caregivers
Outcome
Feasibility of implementing PAID-PR caregiver diabetes distress screening
Methodological detailssingle-centre, routine clinical care, PAID-PR offered in English only; scores ≥80 referred to Diabetes Psychology
  • Single-centre
  • Routine clinical care
  • PAID-PR offered in English only; scores ≥80 referred to Diabetes Psychology

Main finding

As reported in the abstract

Response rate in person

90%

Response rate via REDCap

25%

Scored ≥56 (diabetes distress (DD))

27%

n = 107

Of those with DD, scored ≥80 and referred to psychology

21%

n = 23

Further findings

Correlates of PAID-PR score

Positively correlated with A1c
P = 0.038
Inversely correlated with child age
P = 0.014

Original publication

Feasibility of caregiver diabetes distress screening in routine clinical care of youth with type 1 diabetes. Diabet Med. Published 7 August 2024. doi:10.1111/dme.15416

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