Development and validation of a novel treatment adherence, satisfaction and knowledge questionnaire (TASK-Q) for adult patients with hypothalamic-pituitary disorders
An erratum to this article was published (Pituitary, Oct 2024 ↗)
Authors' conclusion
The TASK-Q is a novel validated scale that can effectively evaluate patients' perspectives on adherence, knowledge and satisfaction. Our findings highlight the significant impact of Advanced Nurse Practitioners in improving patient self-management behaviors, which likely leads to better treatment outcomes for people with hypothalamic-pituitary disorders.
Study context
- Population
- Adults with hypothalamic-pituitary disorders in a Pituitary Nurse-led Clinic152 (58%) completed
- Participants
- 262 adults
- Outcome
- Psychometric properties of the TASK-Q
Methodological detailsthree phases: item generation and content validity, pilot study, main psychometric study, exploratory factor analysis
- Three phases: item generation and content validity, pilot study, main psychometric study
- Exploratory factor analysis
Performance
As reported in the abstract
- Factor structure: 22-item scale with Satisfaction and Knowledge (17 items) and Adherence (5 items) subscales
- 22 items
- Internal consistency (Cronbach's α)
- 0.90
- Correlation satisfaction–knowledge
- r = 0.67, p < 0.001
- Correlation satisfaction–adherence
- r = 0.23, p = 0.005
- Correlation knowledge–adherence
- r = 0.43, p < 0.001
Further findings
Effect of complex treatment regimens on adherence
- Complex regimens (daily GH injections, adjusting glucocorticoids during illness) negatively affected adherence
- P < 0.001
Original publication
Development and validation of a novel treatment adherence, satisfaction and knowledge questionnaire (TASK-Q) for adult patients with hypothalamic-pituitary disorders. Pituitary. Published 8 July 2024. doi:10.
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