Continuous Glucose Monitoring in the Management of Congenital Hyperinsulinism: A National User-satisfaction Survey, UK
Authors' conclusion
Patients with CHI and their carers reported that they feel safer and perceive benefits from CGM in all aspects of living with CHI.
Study context
- Population
- Patients with congenital hyperinsulinism (CHI) using continuous glucose monitoring (CGM) (0–18 years old) and their carers, CHI highly specialized services, UK, May to August 2023
- Participants
- 86 / 15 / 20
- Exposure
- Parents vs Teachers vs Patients
- Parentsn = 86
- Teachersn = 15
- Patientsn = 20
- Outcome
- User-reported ease of CGM handling, influence of CGM on CHI management and QOL, and desire for continued use of CGM
Methodological detailsnational, user-satisfaction survey, modified CGM-satisfaction (CGM-SAT) and glucose monitoring surveys, electronically distributed
- National
- User-satisfaction survey
- Modified CGM-SAT and glucose monitoring surveys
- Electronically distributed
Main finding
As reported in the abstract
Respondents reacting positively (agreed or strongly agreed)
CGM device handling
58%
Influence on CHI management
70%
Quality of life (QOL)
75%
Continued use
86%
Observational data: associations, not effects.
Further findings
Correlation of CGM satisfaction with duration of use
- Positive correlation, r
- 0.40, P < 0.001
Frequency of CGM checking
- Users checking CGM 1 to 5 times per hour
- 86%
Perceived benefits and concerns
- Perceived improvements in safety, hypoglycemia detection, freedom and independence, despite concerns with accuracy and device range
Original publication
Continuous Glucose Monitoring in the Management of Congenital Hyperinsulinism: A National User-satisfaction Survey, UK. J Clin Endocrinol Metab. Published 26 May 2025. doi:10.
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