Caregiver Burden and Its Relationship to Health-Related Quality of Life in Craniopharyngioma Survivors
Authors' conclusion
Survivor poly-symptomatology predicted and incurred significant caregiver burden. Our study separated hyperphagia and obesity and identified hyperphagia and other hypothalamic dysfunction symptoms as understudied issues. Altogether, these findings draw particular attention to the unmet needs of CP survivors and their caregivers.
Study context
- Population
- Self-identified caregivers of craniopharyngioma (CP) survivors
- Participants
- 82 caregivers
- Outcome
- Caregiver burden (Zarit Burden Interview, ZBI) and its relationship to survivor health-related quality of life (HRQOL) (caregiver-reported PedsQL)
Methodological detailsonline survey
- Online survey
Main finding
As reported in the abstract
- Zarit Burden Interview (ZBI) score (moderate), median
- 37
- PedsQL total score (poor), median
- 46.2
- Both scores depended on number of survivor health problems
- P < .001
- Significantly worse scores with symptoms of hypothalamic dysfunction, including hyperphagia but not obesity
- P < .001
- PedsQL total scores significantly predicted ZBI scores
- P < .001
Observational data: associations, not effects.
Further findings
Survivor health conditions after tumor treatment
- Average number of 29 health conditions reported
- 13
- Survivors with obesity who also had hyperphagia
- 70%
Original publication
Caregiver Burden and Its Relationship to Health-Related Quality of Life in Craniopharyngioma Survivors. J Clin Endocrinol Metab. Published 19 August 2023. doi:10.
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