A Scoping Review of Literature Exploring the Healthcare Transition of Individuals with Congenital Adrenal Hyperplasia

Authors' conclusion

PubMed, Scopus, and Embase databases were systematically searched to identify research exploring the HCT of individuals with CAH. Eighteen studies met the inclusion criteria. Findings were categorized as: (1) HCT readiness and communication, (2) HCT programs and outcomes, and (3) HCT experiences and considerations. Barriers hindering effective HCT include clinician shortages, distance to specialty care centers, and socioeconomic challenges. Knowledge gaps include patient and parent perspectives, a lack of validated transition readiness measures, insufficient long-term health outcome data, intervention research, and data on self-management skills. Addressing these gaps is essential to enhancing patient outcomes and continuity of care.