Resource use and costs of transitioning from paediatric to adult care for patients with chronic endocrine disease
Authors' conclusion
Using chronic endocrine diseases as an example, it shows how to calculate the time and cost of a structured transition pathway from paediatric to adult care, which can serve as a starting point for sustainable funding for other chronic rare diseases.
Study context
- Population
- Adolescents and young adults with chronic endocrinopathies in a structured transition pathway from paediatric to adult care143 completed
- Participants
- 147 adolescents
- Outcome
- Resource consumption and costs of key elements of a structured transition pathway
Main finding
As reported in the abstract
Mean cumulative costs per patient of all key elements (Euros)
519 ± 206
Costs for case management (Euros)
104.8 ± 28.0
Mean time from decision to start transition to final transfer consultation (days)
399 ± 159
Duration of transfer consultations (min)
87.6 ± 23.7
Observational data: associations, not effects.
Further findings
Completion of transition pathway
- Completed pathway and transferred to adult care
- 143 of 147 (97.3%)
- Transfer consultations jointly with future adult endocrinologist
- 128 of 143
- Median team members per consultation
- 3
Original publication
Resource use and costs of transitioning from paediatric to adult care for patients with chronic endocrine disease. Clin Endocrinol (Oxf). Published 21 June 2024. doi:10.
Composed by AI from the published abstract and checked against it. How Briefs are made →