Quality of life questionnaire development and validation for adrenocortical carcinoma patients
Authors' conclusion
We defined and validated the Italian questionnaire aiming to explore ACC patients' quality of life, to help the Health Care Professionals to manage and support these patients.
Study context
- Population
- Patients with ACC, Oncology Unit of Brescia's ASST, October 2024 to January 202515 patients · 15 physicians · 37 patients
- Outcome
- Development and psychometric validation of a new instrument (QoLACC) for measuring Patient-Reported Outcome in patients with ACC
Methodological detailssingle-centre, Items graded by 15 patients and 15 physicians; psychometric validity in 37 consecutive patients, Validated scales co-administered; test-retest reliability and construct validity assessed
- Single-centre
- Items graded by 15 patients and 15 physicians; psychometric validity in 37 consecutive patients
- Validated scales co-administered; test-retest reliability and construct validity assessed
Performance
As reported in the abstract
Psychometric properties of QoLACC
- Content validity of items
- 0.93-1.00
- Comprehensibility of items
- 0.80-1.00
- Difficulty of items
- 0.80-1.00
- Total questionnaire reliability, intraclass correlation coefficient (ICC)
- 0.870 (95% CI 0.734-0.937)
- Construct validity: correlations between QoLACC and EORTC item 29 and item 30
- 0.39-0.62
- Correlation QoLACC financial section vs COST
- 0.47
- Correlation QoLACC spiritual section vs JSWBS
- 0.60
Original publication
Quality of life questionnaire development and validation for adrenocortical carcinoma patients. Eur J Endocrinol. Published 24 March 2026. doi:10.
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