Osteoporosis, bone & mineral
Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the first RBD Summit Osteoporos Int Published 9 Jun 2023 Position paper
Methodological details virtual expert meeting Recommendations As issued by the authors
Agreed actions were categorized as short term and long term, and priorities determined
Reference
Issued by RBD Summit: 65 RBD experts from clinical, academic, patient communities and pharmaceutical industry (virtual meeting, 2 days, November 2021)
Document Position paper
Scope Unmet needs in rare bone diseases (RBDs): overcoming obstacles to diagnosis by improving awareness of RBDs, implementing a person-centered care pathway, and narrowing the communication gap between patients and healthcare professionals Authors Chandran M, Alves I, Carpenter T, Davis M, Hsiao EC, Petryk A, et al.All 8 authors Chandran M, Alves I, Carpenter T, Davis M, Hsiao EC, Petryk A, Semler JO, Sleiman M
Published 9 Jun 2023
Original publication Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the first RBD Summit. Osteoporos Int . Published 9 June 2023. doi:10. 1007/ s00198-023-06791-x Composed by AI from the published abstract and checked against it. How Briefs are made →