Development of Quality Indicators to Evaluate the Quality of Care for People with Differences of Sex Development
Authors' conclusion
We have succeeded in developing and jointly adopting a set of QIs that consider a wide range of perspectives on the quality of care for people with DSD and their families. These QIs have been found to be relevant, feasible, and practicable, and they are now used for a yearly quality benchmarking in the participating DSD centres.
Study context
- Population
- Differences of sex development (DSD) care in Germany: 10 DSD clinical centres and 2 self-advocacy groups (DSDCare project); medical and psychological experts, people with DSD and their families10 centres · 2 advocacy groups
- Outcome
- QI set for DSD care
Methodological detailsmulti-stage systematic consensus process, guideline analysis, literature review, qualitative interviews, Donabedian model, quality indicators (QIs) assessed for relevance, feasibility and practicability
- Multi-stage systematic consensus process
- Guideline analysis
- Literature review
- Qualitative interviews
- Donabedian model
- QIs assessed for relevance, feasibility and practicability
Recommendations
As reported in the abstract
QIs developed
37
Structure QIs
22
Process QIs
7
Outcome QIs
8
Original publication
Development of Quality Indicators to Evaluate the Quality of Care for People with Differences of Sex Development. Horm Res Paediatr. Published 29 July 2024. doi:10.
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