Developing a General Population Screening Programme for Paediatric Type 1 Diabetes: Evidence from a Qualitative Study of the Perspectives and Attitudes of Parents
Authors' conclusion
The benefits of T1D screening need to be clearly communicated to facilitate uptake. To this end the use of decision-support tools and better targeted educational materials should be explored. Post-testing, parents expressed preferences for peer support and access to psychological counselling.
Study context
- Population
- Parents, regarding a UK prototype population-based paediatric (ages 3–13) T1D screening programme
- Participants
- 38 parents
- Outcome
- Parental views on paediatric T1D screening
Methodological detailsqualitative interviews, "Burden of Screening" framework analysis
- Qualitative interviews
- "Burden of Screening" framework analysis
Main finding
As reported in the abstract
- Pre-screening: clear communication about the condition important; parents uncertain of screening benefits vs potential anxiety
- Engagement: preference for less invasive testing, reassurance of structured support from healthcare professionals, potential benefit of peer support
- Consequences: a positive result might lead to overly protective behaviours and anxiety from watching and waiting for symptomatic T1D onset
Original publication
Developing a General Population Screening Programme for Paediatric Type 1 Diabetes: Evidence from a Qualitative Study of the Perspectives and Attitudes of Parents. Pediatr Diabetes. Published 20 February 2024. doi:10.
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