Challenges in Care Provision for Children and Adolescents With Differences of Sex Development
Authors' conclusion
Responses to the survey identify gaps and barriers to DSD care across Australia and NZ, particularly a lack of psychosocial supports. Current models fall short of international recommendations and services need to explore the reasons for these gaps further.
Study context
- Population
- Clinicians involved in diagnosis and management of individuals with Differences of Sex Development (DSD) in Australia and New Zealand (NZ)63 complete responses
- Participants
- 79 clinicians
- Outcome
- Current DSD care models and clinician-perceived gaps and barriers
Methodological detailsanonymous online questionnaire, Research Electronic Data Capture (REDCap)
- Anonymous online questionnaire
- REDCap
Main finding
As reported in the abstract
- Not currently part of a DSD multidisciplinary team (MDT) meeting at their center
- 31%
- Identified changes to DSD care over the past 5 years
- 76%
- Identified barriers to current care provision
- 75%
- Psychology currently part of their MDT
- 20%
- Psychology a desired but missing part of their team
- 70%
Observational data: associations, not effects.
Original publication
Challenges in Care Provision for Children and Adolescents With Differences of Sex Development. Clin Endocrinol (Oxf). Published 13 January 2025. doi:10.
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