A novel approach to understanding and assessing the emotional side of type 1 diabetes: The Type 1‐Diabetes Distress Assessment System
Authors' conclusion
The new T1-Diabetes Distress Assessment System demonstrated good reliability and validity, and with measures of both Core emotional burden and Sources of DD, it provides a contemporary, flexible and practical approach to assessing DD that can be used seamlessly to inform intervention for clinicians and researchers.
Study context
- Population
- Adults with T1D; national sample recruited from the TCOYD Research Registry, T1D Exchange and previous studies
- Participants
- 650 respondents
- Outcome
- Development of the T1-Diabetes Distress Assessment System
Methodological detailsqualitative interviews, exploratory and confirmatory factor analyses, national sample, Items developed from qualitative interviews with 15 adults and 7 clinicians
- Qualitative interviews
- Exploratory and confirmatory factor analyses
- National sample
- Items developed from qualitative interviews with 15 adults and 7 clinicians
Performance
As reported in the abstract
8-item Core diabetes distress (DD) scale, α
0.95
10 2- or 3-item DD Source Scales, α range
0.53-0.88
Suggested scale cut-point for elevated DD
≥2.0
Further findings
Construct validity: association with criterion variables
- Higher DD scores significantly linked with higher HbA1c, more frequent severe hypoglycaemia, missed boluses and poorer quality of life
- P > 0.001
Original publication
A novel approach to understanding and assessing the emotional side of type 1 diabetes: The Type 1‐Diabetes Distress Assessment System. Diabet Med. Published 20 January 2024. doi:10.
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